Links

Life

» The origin of life

Mi bebé y yo
http://www.mibebeyyo.com
A site dedicated to the world of mom and baby. This site offers information, forums, the ability to consult specialists, prescriptions, names and much more.

Diseases

» What happens when our recipes combine with our partner’s recipes?

Birth Defects-Genetics-Teratology- Foundations-Support Organizations
http://www.ibis-birthdefects.org/start/found.htm
This site informs you about: Birth Defects – Genetic – Teratology – Foundations and Support Groups. Very complete.

EDDNAL
http://www.eddnal.com
The European Directory of DNA diagnostic Laboratories (EDDNAL) endeavours to disseminate information among medical genetics health-care professionals concerning the availability of DNA-based diagnostic services for rare genetic conditions in Europe. EDDNAL also seeks to promote the highest standards of genetic testing as well as to facilitate research into the development of new diagnostic tests.

Eurogen Guide
http://www.eurogenguide.org.uk/
Genetic Alliance UK is the national charity working to improve the lives of patients and families affected by all types of genetic conditions. We are an alliance of over 180 patient organisations.

GeneTests
http://www.genetests.org
Medical genetics information resource  which reflect the advances in genetic testing capabilities and to address the needs of our ever widening user community.

Genetic Alliance
http://www.geneticalliance.org
Genetic Alliance engages individuals, families and communities to transform health. This requires that we as an organization understand what it means to transform systems, dissolve boundaries, create and sustain open space, and promote the process of openness.

Genetic and Rare Conditions Site
http://www.kumc.edu/gec/support/
Full information on genetic disorders and birth defects aimed at the general population, professionals and educators. Links to national and international organizations.

Integrated Genetics

http://www.genzymegenetics.com/

Leading provider of reproductive genetic testing, with an education service about  indications, limitations , risks and options for certain genetic tests.

Hereditary Disease Foundation
http://www.hdfoundation.org
Foundation for hereditary neurological diseases (Huntington and others).

March of Dimes
http://www.marchofdimes.org/
We help moms have full-term pregnancies and research the problems that threaten the health of babies.

Mucolipidosis IV Foundation ML4
http://www.ml4.org
Mucolipidosis IV Foundation.

National Organization for Rare Disorders
http://www.rarediseases.org
National Organization for Rare Disorders (NORD ) provides advocacy , education and other services to improve the lives of all people affected by rare diseases.

Online Mendelian Inheritance in Man (OMIM)
http://www.ncbi.nlm.nih.gov/omim
(Online Mendelian Inheritance in Man), this link includes the classification of all Mendelian hereditary diseases. The “Bible” of geneticists. A database for professionals. It is likely and completely understandable that you may not be familiar with some of the terminology used in the description of your review of the literature, but it will give you a good idea of the current status of the condition you may be looking for.

Orphanet
http://www.orpha.net/consor/cgi-bin/home.php?Lng=ES
It is an information server on strange diseases and orphanage medication with free access for the public. The aim is to contribute to the improvement of the marshalling and treatment of strange diseases with genetic origin, auto-immune or infectious, infrequente neoplasias or diseases without precise diagnosis. Offering adapted services for the needs of the ill and their families, healthcare professionals and investigators, patient associations and industry. Can be chosen in different languages.

» Origin of hereditary disorders

Birth Defects-Genetics-Teratology- Foundations-Support Organizations
http://www.ibis-birthdefects.org/start/found.htm
This site informs you about: Birth Defects – Genetic – Teratology – Foundations and Support Groups . Very complete.

EDDNAL
http://www.eddnal.com
Register of European Laboratories that perform diagnostic DNA genetic diseases at the molecular level.

Eurogen Guide
http://www.eurogenguide.org.uk/
Genetic Alliance UK is the national charity working to improve the lives of patients and families affected by all types of genetic conditions. We are an alliance of over 180 patient organisations.

GeneTests
http://www.genetests.org
Medical genetics information resource  which reflect the advances in genetic testing capabilities and to address the needs of our ever widening user community.

Genetic Alliance
http://www.geneticalliance.org
Genetic Alliance engages individuals, families and communities to transform health. This requires that we as an organization understand what it means to transform systems, dissolve boundaries, create and sustain open space, and promote the process of openness.

Genetic and Rare Conditions Site
http://www.kumc.edu/gec/support/
Full information on genetic disorders and birth defects aimed at the general population, professionals and educators. Links to national and international organizations.

Integrated Genetics

http://www.genzymegenetics.com/

Leading provider of reproductive genetic testing, with an education service about  indications, limitations , risks and options for certain genetic tests.

Hereditary Disease Foundation
http://www.hdfoundation.org
Foundation for hereditary neurological diseases (Huntington and others).

March of Dimes
http://www.marchofdimes.org/
We help moms have full-term pregnancies and research the problems that threaten the health of babies.

Mucolipidosis IV Foundation ML4
http://www.ml4.org
Mucolipidosis IV Foundation.

National Organization for Rare Disorders
http://www.rarediseases.org
National Organization for Rare Disorders (NORD ) provides advocacy , education and other services to improve the lives of all people affected by rare diseases.

Online Mendelian Inheritance in Man (OMIM)
http://www.ncbi.nlm.nih.gov/omim
(Online Mendelian Inheritance in Man), this link includes the classification of all Mendelian hereditary diseases. The “Bible” of geneticists. A database for professionals. It is likely and completely understandable that you may not be familiar with some of the terminology used in the description of your review of the literature, but it will give you a good idea of the current status of the condition you may be looking for.

Orphanet
http://www.orpha.net/consor/cgi-bin/home.php?Lng=ES
It is an information server on strange diseases and orphanage medication with free access for the public. The aim is to contribute to the improvement of the marshalling and treatment of strange diseases with genetic origin, auto-immune or infectious, infrequente neoplasias or diseases without precise diagnosis. Offering adapted services for the needs of the ill and their families, healthcare professionals and investigators, patient associations and industry. Can be chosen in different languages.

Reproductive Genetics Institute
http://www.reproductivegenetics.com/
Reproductive Genetics Institute (RGI) is a pioneer in the fields of preimplantation genetic diagnosis (PGD). Established in 1989 and based in Chicago, we are committed to helping you create a happy and healthy family.

Women’s Health Dexeus – Salut de la dona Dexeus – Institut Universitari Dexeus
http://www.dexeus.com

In Women’s Health Dexeus accompany our patients at different stages of life by offering comprehensive care in the areas of Obstetrics, Gynecology and Reproductive Medicine . To do this, we offer more than 60 specialists in women’s health who share a common commitment: to provide high quality medical care through teamwork and the latest technology.

Prenatal Diagnosis

» How can we use this vast knowledge?

Genetics & IVF Institute
http://www.givf.com/

The Genetics & IVF Institute is a center fully integrated comprehensive fertility headquartered in Fairfax, VA (Washington, DC metropolitan area). Since 1984, they have been innovative in the treatment of infertility and helping thousands of patients around the world to realize their dreams of starting a family genetic alterations. They offer many fertility treatment options for individuals and couples trying to conceive.

Reproductive Genetics Institute
http://www.reproductivegenetics.com/
Reproductive Genetics Institute (RGI) is a pioneer in the field of preimplantation genetic diagnosis (PGD). Established in 1989 and headquartered in Chicago, we are committed to help create a happy and healthy family.

Women’s Health Dexeus – Salut de la dona Dexeus – Institut Universitari Dexeus
http://www.dexeus.com

In Women’s Health Dexeus accompany our patients at different stages of life by offering comprehensive care in the areas of Obstetrics, Gynecology and Reproductive Medicine . To do this, we offer more than 60 specialists in women’s health who share a common commitment: to provide high quality medical care through teamwork and the latest technology.

» Prenatal Diagnosis Techniques

Genetics & IVF Institute
http://www.givf.com/
The Genetics & IVF Institute is a fully integrated, comprehensive fertility center located in Fairfax, VA (Washington, DC metropolitan area). Since 1984, we have been an innovator in infertility treatment and genetics care and have helped thousands of patients worldwide realize their dreams of starting a family. We offer many fertility treatment options for individuals and couples trying to conceive.

Integrated Genetics
http://www.genzymegenetics.com/
Excellent  education service and patient information about indications, limitations, risks , options, insurance and access to genetic testing and counseling.

Reproductive Genetics Institute 
http://www.reproductivegenetics.com/
Reproductive Genetics Institute (RGI) is a pioneer in the fields of preimplantation genetic diagnosis (PGD). Established in 1989 and based in Chicago, we are committed to helping you create a happy and healthy family.

Women’s Health Dexeus – Salut de la dona Dexeus – Institut Universitari Dexeus
http://www.dexeus.com

In Women’s Health Dexeus accompany our patients at different stages of life by offering comprehensive care in the areas of Obstetrics, Gynecology and Reproductive Medicine . To do this, we offer more than 60 specialists in women’s health who share a common commitment: to provide high quality medical care through teamwork and the latest technology.

The Fetal Medecine Centre
http://www.fetalmedicine.com
The Fetal Medicine Centre provides care for pregnant women by doctors who have trained in ultrasound scanning and fetal medicine under Professor Kypros Nicolaides.

Genetics: present and future

» Patents

Chemical patent Wikipedia
http://en.wikipedia.org/wiki/Chemical_patent

BBC – Nada del cuerpo humano se patenta: fallo en EE.UU. cambia reglas del juego de la medicina genética
http://www.bbc.co.uk/mundo/noticias/2013/06/130613_salud_patente_genes_decision_gtg

Unesco Derecho PUPC Patentes biotecnológicas y genéticas: enfoque jurídico y ético
http://www.unesco.org.uy/shs/red-bioetica/fileadmin/shs/redbioetica/Bergel_patentes.pdf

» Gene therapy

CRISPR: gene editing is just the beginning
http://www.nature.com/news/crispr-gene-editing-is-just-the-beginning-1.19510

CRISPR – Wikipedia
https://en.wikipedia.org/wiki/CRISPR

JJ Oliva: Terapia génica
http://www.ugr.es/~eianez/Biotecnologia/tergen-1.htm

Giant Steps in gene therapy / Pasos de gigante en la terapia génica
http://www.elmundo.es/salud/2014/02/19/53050ceaca4741fc108b4589.html
Salud | EL MUNDO

Gene Therapy
http://en.wikipedia.org/wiki/Gene_therapy
Wikipedia, the free encyclopedia.

Gene Therapy / Terapia Génica
http://www.sefh.es/bibliotecavirtual/fhtomo2/CAP06.pdf
Spanish Society of Hospital Pharmacy.

Gene Therapy / Terapia Génica
http://www.unav.es/ocw/genetica/tema12-4.html
University of Navarra

Gene Therapy / Terapia génica
http://www.monografias.com/trabajos30/terapia-genica/terapia-genica.shtml
Monografias.com

Gene Therapy / Terapia Génica
http://cerezo.pntic.mec.es/~jlacaden/tgenica0.html
Juan Ramón Lacadena – CNICE – MEC

Mitochondrial Gene Therapy, scientific considerations / Terapia génica mitocondrial, consideraciones científicas
http://www.lab314.com/astrolab314.htm

» Cloning and stem cells

Adult Stem-cell treatments: A better way
http://www.cwfa.org/images/content/adultstemcells03.pdf
English Paper on Stem Cell Research and Therapeutic Cloning.

Asociación Española de Bioética y Ética médica
http://www.aebioetica.org/rtf/11%20documentos.pd.pdf
“There is no right to a healthy child” / “No existe un derecho a un hijo sano”

Agencia Católica de Informaciones en América Latina
http://www.aciprensa.com/clonacion/preguntas.htm
Questions and Answers on Cloning.

American Medical Association
http://www.ama-assn.org/ama/pub/physician-resources/medical-science/genetics-molecular-medicine/related-policy-topics/stem-cell-research/basics-stem-cell-research.page?
Basics of Stem Cell Research.

Bioética de las Células Madre
http://www.hottopos.com/notand7/vicentebellver.htm
Bioethics of Stem Cells.

CBHD: Stem Cell Research and “Therapeutic” Cloning
http://www.cbhd.org/resources/stemcells/overview.htm
Website in which opposing views about the research mentioned stem cells and therapeutic cloning.

Center for genetics and society
http://www.genetics-and-society.org/espanol/

National Advisory Commission on Bioethics US
http://bioethics.gov/
Advises the President on bioethical issues related to advances in biomedical science and technology.

Commission of the European Communities
http://www.diariomedico.com/asesor/cecelulas090403.pdf 

Enrique Iáñez, Instituto de Biotecnología
http://www.ugr.es/~eianez/Biotecnologia/articulos.htm
University of Granada, Spain.

Genetics and Society
http://www.genetics-and-society.org/espanol/ciencia_basica.html
The Basic Science You Should …

Guide to Stem Cells
http://whyfiles.org/127stem_cell/2.html
Guide on stem cells.

Ilustrados.com
http://www.ilustrados.com/tema/4891/Consideraciones-sobre-aplicaciones-biomedicas-celulas-madre.html
Considerations on the biomedical applications of cell …

ISSCR
http://www.closerlookatstemcells.org
The International Society for Stem Cell Research is an independent, nonprofit organization established to promote and foster the exchange and dissemination of information and ideas relating to stem cells, to encourage the general field of research involving stem cells and to promote professional and public education in all areas of stem cell research and application. Members are admitted on the basis of their professional credentials as scientists or clinicians working in the field of stem cell research.

The cloning of Dolly: an entertaining explanation
http://www.synapses.co.uk/science/clone.html
From Science Explained (january 1988).

Mayo Clinic
http://www.mayoclinic.org/tests-procedures/stem-cell-transplant/in-depth/stem-cells/art-20048117
Stem cells: What they are and what they do –

Medical News Today
http://www.medicalnewstoday.com/info/stem_cell/
What are Stem Cells?

National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov/research/stem_cell/
Information on Stem Cell Research: National Institute of …

NIH Stem Cell Information Home Page
http://stemcells.nih.gov/index.asp
Home site of the National Institute of Health that provides information on stem cells.

StemCellsThatWork
http://stemcellsthatwork.blogspot.com.es/2014/08/adult-taking-charge.html
“Do No Harm: the Coalition of Americans for Research Ethics” / “No hacer daño: Coalición de Americanos para la Ética en Investigación”

Stem Cell Main
http://www.aaas.org/spp/sfrl/projects/stem/main.htm
Stem cell website.

Stem cell
http://en.wikipedia.org/wiki/Stem_cell
Wikipedia, the free encyclopedia.

Stem Cell Basics
http://stemcells.nih.gov/info/basics
Stem Cell Information.

Universitat de Barcelona
http://www.ub.edu/fildt/archivos/cem.pdf
Paper about Procedure of embryonic stem cells obtainance.

World Healt Organisation – Organización Mundial de la Salud
http://search.who.int/search?q=stem+cells+research&ie=utf8&site=who&client=_en_r&proxystylesheet=_en_r&output=xml_no_dtd&oe=utf8&getfields=doctype
A dozen questions (and answers) on human cloning.


» Reproductive cloning

Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Cloning

Ética clonación reproductiva – Universidad de Granada
http://www.ugr.es/~eianez/Biotecnologia/clonreproetic.htm


» Stem Cells – Amniotic Fluid

Fluvium
http://www.fluvium.org/textos/vidahumana/vid175.htm
Un estudio señala la eficacia de células madre del líquido amniótico.

Teinteresa.es
http://www.teinteresa.es/salud/liquido-amniotico-celulas-madre_0_1144686701.html
En el líquido amniótico también hay células madre.

Wikipedia, la enciclopedia libre
http://en.wikipedia.org/wiki/Amniotic_stem_cells
Amniotic stem cells.


» Stem Cells – Induced Pluripotent stem cell (iPS)

MedlinePlus – Células madre
http://vsearch.nlm.nih.gov/vivisimo/cgi-bin/query-meta?v%3Aproject=medlineplus-spanish&query=c%C3%A9lulas+madre&x=0&y=0

GeoSalud – Células Madre Pluripotentes Inducidas
http://www.geosalud.com/celulas_madre/pluripotenciales_inducidas.html

Wikipedia, the free encyclopedia
http://en.wikipedia.org/wiki/Induced_pluripotent_stem_cell
Induced pluripotent stem cells.

» Stem Cells – Nuclear transfer

Equipo de Docencia e Investigación UBA Derecho
http://biotech.bioetica.org/clase2-16.htm
Cloning and Nuclear Transfer.

Wikipedia, the free encyclopedia
http://es.wikipedia.org/wiki/Transferencia_nuclear_celular
Cell nuclear transference.

» Stem Cells – Parthenogenesis

Asociación Española de Bioética y Ética
http://www.aebioetica.org/rtf/02BIOETICA-55.pdf
Parthenogenesis.

Wikipedia, the free encyclopedia
http://es.wikipedia.org/wiki/Partenog%C3%A9nesis
Parthenogenesis.

Wikipedia, the free encyclopedia
http://es.wikipedia.org/wiki/Partenog%C3%A9nesis_en_mam%C3%ADferos
Parthenogenesis in mammals.


» Stem Cells – Placental tissue

Sociedad Española de Bioquímica y Biología Molecular
http://www.sebbm.es/ES/divulgacion-ciencia-para-todos_10/aplicacion-de-las-celulas-madre-en-la-terapeutica-ficcion-o-realidad_633

Sólo ciencia
http://www.solociencia.com/biologia/07021412.htm

Corporación de Fomento de la Producción
http://repositoriodigital.corfo.cl/handle/11373/2966


» Stem Cells – Umbilical cord

Biblioteca de Salud de Sanitas
http://www.sanitas.es/sanitas/seguros/es/particulares/biblioteca-de-salud/embarazo-maternidad/parto/sagre-cordon-umbilical.html
The Cord Blood.

Celvitae, células madre
http://www.celvitae.es/es/

Cord Blood Registry, The Name to Trust in Cord Blood Banking
http://www.cordblood.com/
Registry Cord Blood, In whom to trust when looking for cord blood.

Crio·cord
http://crio-cord.com/es/qu%C3%A9-son-las-c%C3%A9lulas-madre/informaci%C3%B3n-general-1

Finding the best private cord blood bank for you
http://www.babycenter.com/refcap/%20pregnancy/childbirth/1354934.html
Finding the best private bank cord blood.

Parent’s Guide to Cord Blood Banks
http://www.parentsguidecordblood.com/
Parent’s Guide to Cord Blood Banking Umbilical.

The Cord Blood Center
http://www.cordbloodbanking.com/cord-blood/
This organization promotes awareness for current and future stem cell treatments, and are committed to being the most comprehensive and up-to-date resource available for mothers and families considering cord blood.

Cord Blood Guide
https://www.cordbloodguide.com/
Cord blood treats over 80 diseases including leukemia and lymphoma. Donations are painless and are being used to save the lives of children and adults around the world. Learn more in this free downloadable guide.


» Stem Cells – Umbilical cord tissue sampling

Cord Tissue And rapidly changing medicine
http://www.cordblood.com/benefits-cord-blood/cord-tissue

Crio·cord
http://crio-cord.com/es/qué-son-las-células-madre/por-qué-conservarlas-ahora

Future Health. Banco de Células madre.
http://www.futurehealthbiobank.es/servicios-y-precios/celulas-madre-de-la-sangre-del-cordon/?gclid=CKO1x4aOocICFTCWtAodpVoA6A

Stem Cell. Banco de  Células madre.
http://www.bancostemcell.com

Doctors & Health
http://doctorsandhealth.com/servicio/sangre-del-cordon-servicio-basico-mas-tejido-385

Societies

Asociación Española de Diagnóstico Prenatal
http://www.aedprenatal.com
Spanish professionals dedicated to prenatal diagnosis.

Asociación Española de Genética Humana
http://www.aegh.org

Association of professionals dedicated to human genetics, and links to other database companies.

A World of Genetic Societies

http://www.faseb.org/genetics

This site provides information on professional organizations with additional links to other educational programs.

Sociedad Española de Fertilidad
http://www.sefertilidad.com/
Official website of the Spanish Fertility Society.

Sociedad Americana de Genética Humana
http://www.ashg.org/

The American Society of Human Genetics (SAG), founded in 1948, is the primary professional membership organization for human genetics specialists worldwide. About 8,000 members of the Society are scientists, health professionals, and others with an interest in the field of human genetics. Its members work in a wide range of settings, including universities, hospitals, and medical institutes and research laboratories. Its mission is to advance the science of human genetics, health and society through excellence in research, education and advocacy.

Sociedad Española de Genética Clínica y Dismorfologia
http://www.segcd.org
The Spanish Society of Clinical Genetics and Dysmorphology (SEGCD) is a scientific nonprofit society dedicated to this pediatricians and other specialists or health professionals. It was founded in 1978 as a Section of the Spanish Association of Pediatrics (AEP) and in 2002 was accredited as a Society.

Sociedad Europea de Genética Humana
http://www.eshg.org/

It is a non-profit organization. Its objectives are to promote research in human and medical genetics basic and applied, to ensure high standards in clinical practice and to facilitate contacts between all who share these objectives, in particular those working in Europe. The Company will seek to promote and integrate research and its translation into clinical benefits and professional and public education in all areas of human genetics.

RELAGH

http://www.relagh.ufrgs.br/

Latin American Network of Human Genetics.

Access to Medical Information

Free Medical Journal

http://www.freemedicaljournals.com

Website offering a list of medical journals that allow free access articles.

PubMed

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=Pmc

Excellent database, giving you access to more than 12 million citations for biomedical literature. It also provides access to other databases.

Other links

Lasalud
http://www.lasalud.com/

Health and medical information for professionals and consumers. Seven million over 1000 links and news daily in 26 specialties.

Hopkins Medicine

http://www.hopkinsmedicine.org/healthlibrary/ 

Guidelines for the diagnosis, treatment and prevention of diseases.

Fundación Genes y Gentes
http://www.fundaciongenesygentes.es

It is a declared Social Interest and non-profit entity; pioneer in Spain for your interest and social concern about genetic issues comes with the vocation of “ongoing support to any member of society, natural or legal person, training, education, research and genetic and social protection, since the recognition of the dignity , fundamental rights and freedoms of the people.”

La Medtrópoli
http://www.medtropoli.net

Interactive portal with news about health and medicine in general, research articles and review, electronic journal, medical dictionary, images, forum, download area, among other things.

WHO World Health Organization / OMS Organización Mundial de la Salud
http://www.who.int/

WHO is the directing and coordinating authority for health within the United Nations system. It is responsible for providing leadership on global health matters, shaping the health research agenda, setting norms and standards, articulating policy options based on the evidence, providing technical support to countries and monitoring and assessing health trends.

Patient UK
http://www.patient.co.uk

Educational Web reports on health, illness and has links.

The breast cancer research foundation

http://www.bcrfcure.org/

Foundation for breast cancer.

The DNA Learning Center

http://www.dnalc.org/
The mission of the DNA Learning Center is to prepare students and families to thrive in the era of genetics. They have a vision that one day all elementary students will be exposed to the principles of genetics and disease risk; that one day all high school students have the opportunity to do hands-on experiments with DNA; and when all families have access to genetic information that may need to make appropriate decisions about health care.

The Internet Sleuth

http://www.isleuth.com/heal.html
Medical search engines directory.

Reviewed: 11th of June 2016